Assistance For Children With Autism

Financial And Community Supports For Children With Autism

Having a child with autism can be such a difficult thing for parents. You love that child because they are your own flesh and blood, but that child may or may not be able to return that affection or even eye contact. They may shirk and shy at your touch, being tactile defensive. They may have issues you don’t even know where to begin to deal with. It’s hard, but there is a lot of help out there if you know where to turn.

If you have all the right documentation from diagnostic specialists and pediatricians, the first place to go is your local Social Security Administration office. Applying for disability funding only takes an hour of your time, and in most states, Supplemental Security Income, or SSI, is applied for at the same time. Within two to six months, you will know if your child has been approved. The amounts vary as much as a $1,000 per child per month, depending on where you live, but the standard monthly allotment is about $2,000-3,000. This includes the amounts of Disability plus SSI from both the state and federal levels, and can be direct deposited into your checking account to help you take care of all the special needs your child has. This, of course is a great comfort, to say the least, as you can hire specially trained people to come in and take care of your child giving you a little more freedom to focus on things that might otherwise be difficult with an autistic child in tow.

Additionally, the sooner you enroll your child in a State Birth to Three Early Intervention service the sooner your child can start getting therapeutic care at home. From there, early learning classes for four and five year olds in local elementary schools can continue what the birth to three therapists have started. There is hope for every child, but only if you start as soon as possible. Regular visits to the pediatrician will help you recognize if your child is behind developmentally and may have autism and be in need of services.

Also, many states have Long Term Care or LTC services, that will continue to care for your autistic child when they reach young adult years and can’t care for themselves. Each situation is different and needs to be evaluated by a specially trained intake worker at the county level to determine if your child qualifies. This type of service also has therapeutic services provided by a separate autism therapy office that sends autism line therapists into your home to work with your child a certain number of hours a week for as long as they need it. Because the parents do not need to be present during these therapy sessions, this is also a good time for a little respite for stressed parents. The downside to this is that most states require that you apply for such services before the child turns eight. It’s a race against the clock, because the application process can take up to a year, so applying as soon as you can means everything.

Lastly, there are support groups out there and in your community for parents undergoing some of the same problems and issues with their children who have autism. No one could expect you to do this alone, and these groups are a great place to safely vent everything you need to. The other parents there understand what you’re going through, and will be of comfort to you. You have to take care of you just as much as your child; remember that.

Next time, we will discuss assistive technology for children with autism.

10 comments

  1. http://www.cbs8.com/story/19604621/2-men-accused-of-abusing-autistic-man-plead-not-guilty

    http://www.hlntv.com/video/2012/09/27/caught-tape-autistic-man-allegedly-abused-caregivers

    http://transcripts.cnn.com/TRANSCRIPTS/1209/27/ddhln.01.html

    Caregivers caught on tape abusing defenseless severely autistic young man is a wake up call to all of us in autism communities across the globe. Video surveillance catching the abusers probably saved this young man’s life!

  2. this information is incorrect as autistic children can only get SSI unless they have another underlying disability like adhd,ms,etc… and the most you can get in any state is 733.00 which doesnt barely pay the rent on a home now days.Please post correct information if your going to post it.. because not one parent can recieve 2 to 3k at all with any disability.

    1. I agree with what you said about amounts. However, my son has severe autism and no other diagnosis and he receives SSI.

  3. i agree….my son would be getting 733 but because I worked social security is making him pay money back and still has to for another 5 years….I need help bad… agencies are requesting that I don’t work right now because he is out of control, so now what am I supposed to do.

    1. If u can ,homeschooling may b better worked for my daughter I know the bills can kill u but if u have help It is best and they have a Gardiner grant that will pay for all ur homeschooling expenses and computers and ipads and all school supplies even tutoring P.E. equipment,Pretty much anything u decided will help ur child. 10,500 expense limit.

  4. we had apply and denied twice they said my husband salary is high.. the lawyer told us to sell the one of our vehicle and we did it then we apply again sad to say denied again,,i m not working only my husband,,what we gonna do?

  5. Excuse me, I m farid ahmed from Dhaka Bangladesh. I have a autistic child. How can I improve this child activity pls can you share me? my email address is faridahmed44691@gmail. com

  6. Good evening I leave in South Africa and I am asking for a place where I can ask for donation for my grand son who is diagnosed with autism so he can go to school because we struggling to take him to school he is now 5 years old now.

  7. My name is Roman Colter, retired have two grand kids that live with me and my wife. The two kids have autism and mother is deaf can’t hear at all. The mother stay in Phoenix where she also work. She come and see them on her off days. Her mail come here but she has an apartment in Phoenix where she lives. Both kids go to school they are 3&4 years old. !e and my wife take care of the kids all the time they go everywhere with us. They need to be watched 24-7.

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